Life can be incredibly difficult when even eating lunch, or rolling over in the middle of the night, can cause you agony.
That’s the reality for siblings Nur Siddiqah and Muhammad Azraqee Azny.
They have a rare genetic disorder called epidermolysis bullosa (EB), which some call “the worst disease you’ve never heard of”.
- Around 500,000 people live with epidermolysis bullosa, a genetic skin condition with no cure
- Scientists are exploring different treatment options: protein therapy, cell…